Lesser Known Ways of Managing Stress as the Parent of a Child with Autism
Parent Perspective: How to Stress Less as a Autism Parent
Parents of children with autism experience stress levels comparable to those of combat soldiers, according to an article in The Disability Scoop (Diament, 2019). For many, like myself, this stress can become so constant and unrelenting that you may not even realize how chronic it has become. Yale Medicine defines chronic stress as “a consistent sense of feeling pressured and overwhelmed over a long period of time”—a definition that likely resonates with many autism parents (“Chronic Stress,” 2024).
While self-care is often recommended as a way to manage stress—think meditating, staying hydrated, getting sunshine, or exercising—those strategies aren’t always enough. And chances are, you’re already doing some of those things. What else can we do to effectively manage stress?
There are other things you can do to help lessen the load and many of them center around your support network—the people who help care for both you and your child. In this blog, we’ll explore how building the right support system and accessing helpful resources can be some of the most effective ways to manage your stress.
Let’s be honest: there are some days when eating junk food feels easier than preparing a healthy meal, and many times when splurging on a pedicure simply isn’t in the budget. Those forms of self-care may not always be sustainable or affordable, but a strong support network can continue to uplift you—even when you need to take a step back.
Find a positive, encouraging autism support group.
There are countless support groups available today, the key is finding the right one. But be careful—joining a group that tends to vent, quickly leads to complaining, and can only foster a sense of victimization, making you feel even more overwhelmed. On the other hand, an emotionally healthy group with a hopeful outlook can be incredibly encouraging and affirming. Connecting with others who understand your experience can provide a sense of solidarity and relief.
You can find local support groups through your child’s school or pediatrician’s office, or you can explore online communities across the country or even the world. Facebook groups and other online spaces often offer practical tips and ongoing encouragement, which can be helpful. But if you’re looking for something more personal, I recommend We Are Brave Together. This organization offers both online support and in-person retreats, which is the best of both worlds.
If a more structured approach doesn’t fit your nature, consider finding one or two individuals with whom you connect deeply. Having a smaller support system can still provide the camaraderie and encouragement you need.
When you find that group of people or even one special friend, you’ll be able to share your challenges and triumphs, making the journey feel a little less lonely and much more normal—at least normal for you.
Create a community completely separate from autism.
While it’s essential to have friends who understand your journey as a parent of a child with autism, it’s equally important to surround yourself with people who are completely removed from the world of special needs. Find a community that shares your interests or passions—something that’s purely about what you enjoy.
- Workout Classes or Groups: Maybe you’ve joined a Pilates class at the gym and connected with people who love it as much as you do. Beyond the class itself, you might grab lunch together afterward or even text each other about healthy meal ideas. Physical activity combined with positive social interactions is a great way to relieve stress.
- Book Clubs: If your passion is reading, join or start a book club. This type of community has multiple benefits; monthly gatherings with like-minded people and the opportunity to escape into a good story. Losing yourself in a fictional world, even briefly, can be a wonderful way to ease your mind.
- Places of Worship or Neighborhood Gatherings: Many people find a great sense of belonging in a church Bible study or neighborhood card game. Whatever it is, the key is to make sure it has nothing to do with parenting or your child. Choose a group where you can simply be yourself, independent of your role as a parent. This allows you to connect with others who know you for you, not just as a mom to a child with autism.
Taking time for yourself in a community completely unrelated to autism is vital. It gives you a chance to recharge and reconnect with your own identity while building relationships outside of your caregiving responsibilities.
Partner with a dedicated ABA provider.
When you find the right BCBA (Board Certified Behavior Analyst) and a team of ABA (Applied Behavior Analysis) therapists to work with your child, you may feel an immediate sense of relief. It’s not that they provide the same type of emotional support as a friend or therapist, but they’ll walk alongside you through the struggles of autism and help implement effective and actionable strategies that may allow a layer of anxiety to fall away. An empathetic and diligent BCBA can bring both help and hope, offering guidance and support that sustains you for the long haul.
Speaking from personal experience, I can’t overstate how much my son’s ABA therapists have helped ease my stress. They help me manage my expectations, troubleshoot challenges, and develop practical and manageable (that’s key) plans for overcoming obstacles. When I feel overwhelmed or start projecting my fears about the future, talking things through with my son’s BCBA helps ground me in the present moment. Those conversations give me clarity and the strength to keep working through our current challenges.
Most of the time, you know right away whether a BCBA is the right fit for your child. It’s crucial for them to connect with both your child and you. A foundation of trust and mutual understanding is essential to building a productive, supportive relationship.
If you’re searching for an ABA provider or BCBA for your child, here are some things to look for:
- Do they ask thoughtful, engaging questions? A good BCBA will take the time to understand both your child’s needs and your concerns.
- Do they have a playful and approachable demeanor balanced with a firm, professional approach? This balance is critical in establishing trust with your child.
- Can they share success stories? Hearing examples of progress with other clients can give you confidence in their abilities.
- Are they open to incorporating your concerns and goals into your child’s programming? Collaborating is essential for ensuring you’re working toward the same outcomes.
- What is their communication style? Make sure they offer a clear way for you to connect with them regularly to stay updated and aligned.
The right ABA provider can make a world of difference—not just for your child, but for you, too.
They become a partner in the journey, helping to ease the weight on your shoulders while giving you the tools to navigate challenges with confidence.
Caring for the caregivers.
Having the right support system in place can make a world of difference in your stress and anxiety levels. This support can look different for everyone. Extroverted parents with high energy may thrive with a wide network of relationships that keep their mindset upbeat and positive. More introverted and reserved parents may find solace in a deep, meaningful connection with one trusted friend or an incredible therapist who understands their journey. Neither is more right than the other; what’s most important is finding which best suits your needs.
Even if you’re in a season where you feel like you don’t need much extra help or encouragement, now is the perfect time to build a safety net for the future. Life has its ups and downs, and having a system of support ready can make challenging times more manageable. In the meantime, you might also consider stepping into the role of a cheerleader for someone else—offering guidance, encouragement, and hope to a fellow parent in need. Your investment in someone else always comes with a greater return.
Autism is a journey, and it’s always better when we walk it together.
At BrightPath Behavior, our therapists are dedicated to creating a positive, playful environment for kids and building a hopeful, supportive partnership with parents. We aim to understand the needs of the whole family, and our goal is to walk alongside you every step of the path, holding out a light of hope for the journey ahead.
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References
“Chronic Stress.” Yale Medicine, Yale Medicine, 25 Apr. 2024, www.yalemedicine.org/conditions/stress-disorder.
Diament, Michelle. “Autism Moms Have Stress Similar to Combat Soldiers – Disability Scoop.” Disability Scoop, 10 Nov. 2019, www.disabilityscoop.com/2009/11/10/autism-moms-stress/6121/.
Kathy McClelland is a freelance copywriter and marketer for pediatric healthcare and special education brands from Austin, Texas. Before becoming a mom, her work included promoting medical journals and online publications for the American Academy of Pediatrics and parenting books for Tyndale House Publishers. When her second son was born with a rare genetic condition, she was thrust into the world of special needs parenting. Her website is kathymcopywriting.com.
Disclaimer: While I am a consultant writing on behalf of BrightPath Behavior, my child is not a current client. The views and experiences shared in this blog post are entirely from a parent’s perspective. My goal is to provide informative content and insights based on my personal experiences, as well as interviews conducted with the staff at BrightPath Behavior.
Note: The information provided in this article is for general guidance and does not replace professional advice. Please consult with a healthcare professional or therapist for personalized guidance.